Rare diseases patients need more than miracles and Trumpcare

Forbes

11 March 2017 - Never one to miss an opportunity, Trump cheapened Rare Disease Week by exploiting a young woman, Megan Crowley, who has a rare, progressive and fatal genetic disease called Pompe’s. 

Trump used the opportunity to again attack the FDA saying, “But our slow and burdensome approval process at the Food and Drug Administration keeps too many advances, like the one that saved Megan's life, from reaching those in need…If we slash the restraints, not just at the FDA but across our government, then we will be blessed with far more miracles just like Megan.”

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Michael Wonder

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Michael Wonder

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Medicine , US , Orphan drug , Regulation