Kiwi toddler fights spinal muscular atrophy in Australia after PHARMAC stall access to life-saving drug

Newshub

7 September 2019 - For the first time in her life, two-year-old Charlotte Bond is showing signs that one day she could walk on her own.

It's a proud feeling for her mother Kristie, who uprooted the family's life in Auckland's Pukekohe to access a life-saving drug in Australia.

Charlotte's motor-neuron disease - spinal muscular atrophy - causes basic movements to be exhausting as muscles around her body slowly die.

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Michael Wonder

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Michael Wonder